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RE: Hysterectomy at 28 - 5/28/2008 10:11:20 PM
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PrincessDonna
Posts: 10218
Joined: 4/11/2005
From: Cow country, Upstate NY
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quote:
And frankly, with all you have been through, I can't imagine you being worse off! LOL
LOL...thanks...I think. 
As far as the crazy thing, I think I may need to lean heavily on my sisters in Christ for a time, and of course on God. But I think I will be okay if I can just talk, cry, pray, whatever, and not try to pretend everything is okay if it isn't, KWIM?
_____________________________
He fulfills the desires of those who fear Him;
He hears their cry and saves them.
The Lord watches over all who love him,
but all the wicked He will destroy.
~Psalm 145:19-20~
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RE: Hysterectomy at 28 - 5/28/2008 10:13:31 PM
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Jenny-Fair
Posts: 5783
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From: WA
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Yeah, I do, and I think you are correct.
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Tony: Ziva, did you kill Houdini?
Ziva: It is possible. I do not remember all their names.
My Blog
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RE: Hysterectomy at 28 - 5/31/2008 8:21:21 AM
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W.O.F.
Posts: 1386
Joined: 4/11/2005
From: an ignoble beginning
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Donna,
You know that You are loved beyond all measure!
My mother had to have a hysterectomy at age 39...she SHOULD have had it sooner....NOT having it and living with the constant pain and hormone fluctuations (because endo does affect them too) made her crazy (okay...maybe not crazy..but pretty mentally imbalanced..seriously)....
While I wish you were not having to face this...I do believe that this is probably God's way of saying "you are done with natural children...." and that He wants you to show His love and grace through this difficult path for a reason beyond our understanding. We so often want Him to tell us when we are done having children..and then we wrestle with those very clear answers when they get put in our way...whether it be through health issues, or whatever. WE so need to trust Him to work all for our good, and the good of those around us! (and I am the worst at seeing that....so I am preaching to myself here.....not you !)
My mom was prayed for and was healed prior to her surgery (about 2 weeks prior). She FELT the healing...and yet...2 weeks later she went through an emergency hysterectomy. She was, at first, very angry with God...then she started talking with her roommate. Her roommate was a 28 year old woman with uterine cancer...who wasn't saved. My mom was able to minister to her and she got saved...and healed....my mom was in the hospital for about 2 weeks (this was a a long time ago...lol..she is 65 now)...and this young woman's tests came back completely clear at the end of those two weeks. My mom was able to get her connected with a good church as well. Did God heal my mother? Yes.......long enough so that she would be in the hospital when THIS young woman was there...because SHE needed the gospel.
All that to say....as hard as this is...be sure that God's Hand is in it..and He will lovingly guide you through it.
Know that it is okay to mourn..even years from now...over having to make this decision.
Know that I am praying for you and for God to just give you peace and a clear cut answer before this jellybean is born.
and most of all
KNOW that nothing changes the fact that you are loved beyond all measure.
< Message edited by W.O.F. -- 5/31/2008 8:39:56 AM >
_____________________________
Live your life in such a way that when your feet hit the floor in the morning, Satan shudders and says, "Oh no, she's awake."
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RE: Hysterectomy at 28 - 5/31/2008 10:43:17 AM
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PrincessDonna
Posts: 10218
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From: Cow country, Upstate NY
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Thanks, WOF. That is exactly what I needed to read this morning. Thank you.
Brian and I had a stay in bed, snuggle, and talk morning. I love those. Happy sigh. We talked quite a bit about this topic. He doesn't want to make a decision one way or another and admitted it is because he is not comfortable making a decision about MY body (God bless that man...I can't be mad at him for being indecisive, when so many women have husbands who want to decide everything for them, KWIM?). He is sad that we won't have more babies if we go ahead with it (again...God bless that man...he loves my whale-like body even when I don't). But most of all, he is stuck in the "but God hasn't told us what to do" thing that I have struggled with. Bottom line...he understands the reasons why it is looking like this is the time, is willing to support me no matter what I decide, and really hopes God will get that mega-phone out for us so there will be no doubt.
We talked a bit about the changes that a hysterectomy is likely to bring. I don't think he had thought about that at all, other than me not being in constant pain when I'm not pregnant. He had no idea of the kind of changes that come with menopause, even surgical. I told him his "happy place" may turn into a desert...he told me that we'll irrigate it.  From what I understand, it also gets shorter at first because the cervix is removed and a vaginal cuff is made (maybe someone knows more about this???). Call me shallow, but I am concerned about our sex life afterward. I mean...I don't want to trade the pain for other things that make things not work right! Anyway, even after I told him all that I know about the changes that might happen, his attitude was that we will deal with it and it'll be okay. (Did I ever tell you I love that man?)
Then the emotional changes that are possible, at least while we are figuring out what hormone replacement or natural alternative works best for my body...I don't know how he will deal with all that. He's not usually a person to support me in the way I need supporting, if that makes sense? Meaning, I think I need to not rely on him for things he doesn't have to give, but I'm not sure if that's the right attitude. I know my main support needs to come from God, but still...Brian is important, and he needs to plan on me needing him a bit more than usual, right? I know you all and some friends IRL will be invaluable to me during this time too.
I'm scared of the unknown. Always have been. But I know God will grow me in this situation and I trust Him. I guess the decision is made since Brian won't say decisively either way and my heart knows this is the right thing. So...that's where I'm at now, planning on going ahead with this unless God very clearly shows us not to (which I am more than open to!).
< Message edited by PrincessDonna -- 5/31/2008 10:52:42 AM >
_____________________________
He fulfills the desires of those who fear Him;
He hears their cry and saves them.
The Lord watches over all who love him,
but all the wicked He will destroy.
~Psalm 145:19-20~
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RE: Hysterectomy at 28 - 5/31/2008 11:23:32 AM
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Brandy
Posts: 1839
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From: Los Angeles
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What a great post WOF, even I gleaned some loving from that, thank you!
Donna, my mom kept her cervix. They took fallopians and uterine body but left cervix as a 'cap', not sure if that's an option for you. Add to list 
Brian is a great guy for not wanting to make the decision for you, where you've seen men be too controlling I've seen men be too hands off, "It's your body, your decision" and not help at all. I don't know which end of the spectrum would be worse for me to deal with.
Would it help Brian at all to have a discussion just prior to surgery about what you may or may not need support wise? You do know his limits, which is awesome, but I think he'd try to step his efforts if he knew how much you needed certain things. I'm thinking like not having to ask for help with kids, just making a dinner or two, or even just as simple as "Please hug and touch me as often as you can, I need that connection"
I've said that to Jeremy a few times when dealing some heavy stuff. It surprises him because I'm usually the opposite, let me deal on my own type, I will come to you for stuff. But there are areas where I just need that physical touch to help re-set my brain and move forward.
_____________________________
~Brandy
<--- Isabel Grace eating on Thanksgiving. Her first food.
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RE: Hysterectomy at 28 - 5/31/2008 11:30:21 AM
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Ellie-Mae
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From: The EMPIRE state!
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I am not sure what you mean by the the cervix and the vaginal cuff thing. Ummm... Russ and I are doing as well as ever (better because I an not uncomfortable and don't menstrate anymore), The only problem that I had was that I had some scar tissue that needed to be stretched a little, but it didn't take much to fix that.
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Please do not PM me about this message, discuss it at the water cooler, or include it in your church bulletins. If you have questions, please keep them to yourself. ~Kerrlaw
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RE: Hysterectomy at 28 - 5/31/2008 11:58:56 AM
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PrincessDonna
Posts: 10218
Joined: 4/11/2005
From: Cow country, Upstate NY
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quote:
Donna, my mom kept her cervix. They took fallopians and uterine body but left cervix as a 'cap', not sure if that's an option for you. Add to list
I will add it to the list. Not sure I want to keep it though...if I don't have it anymore, then no more pap smears! LOL
quote:
Would it help Brian at all to have a discussion just prior to surgery about what you may or may not need support wise? You do know his limits, which is awesome, but I think he'd try to step his efforts if he knew how much you needed certain things. I'm thinking like not having to ask for help with kids, just making a dinner or two, or even just as simple as "Please hug and touch me as often as you can, I need that connection"
Good point. Yeah, I think it'll help if we have that discussion right before the surgery. He's not a good long-term thinker, and to him, December or January is forever away.
quote:
I am not sure what you mean by the the cervix and the vaginal cuff thing. Ummm... Russ and I are doing as well as ever (better because I an not uncomfortable and don't menstrate anymore), The only problem that I had was that I had some scar tissue that needed to be stretched a little, but it didn't take much to fix that.
Well, if your doctor took your cervix, then I think they had to do the vaginal cuff thing. I think it's where they kind of fold it over and sew it up where the cervix was, because they have to make it so there's no opening?
I did talk to my mom (in a very bizarre conversation...LOL) about this a little too and she said it just took some stretching and then things were fine. So hopefully it'll all be alright. I'm sure not being in pain anymore, after the initial surgery stuff, will be a huge improvement for us anyway, so I'll try to focus on that instead of the unknowns.
_____________________________
He fulfills the desires of those who fear Him;
He hears their cry and saves them.
The Lord watches over all who love him,
but all the wicked He will destroy.
~Psalm 145:19-20~
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RE: Hysterectomy at 28 - 6/2/2008 8:47:57 PM
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PastorPatricia
Posts: 206
Joined: 8/6/2005
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Donna, I know how you are feeling. I had a hysterectomy at age 30. We had four children at the time. As I look back now it was the best thing I could have done. I felt so much better and had so much more energy. We had no intentions of having more children but God had other plans and brought a small baby girl into our lives in a most unusal way and we adopted her. She is married now and has given us three grandchildren. Trust God to work through your doctor and together work out the best solution for you. God bless you and your family.
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RE: Hysterectomy at 28 - 6/20/2008 11:50:43 AM
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PrincessDonna
Posts: 10218
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From: Cow country, Upstate NY
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Going to work on getting my list of questions together sometime today. My appointment is next Thursday. (HOW is it possible another month has gone by already??)
_____________________________
He fulfills the desires of those who fear Him;
He hears their cry and saves them.
The Lord watches over all who love him,
but all the wicked He will destroy.
~Psalm 145:19-20~
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RE: Hysterectomy at 28 - 6/20/2008 1:27:19 PM
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lexie
Posts: 2951
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From: Toronto
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(((Donna)))
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RE: Hysterectomy at 28 - 6/23/2008 11:49:55 PM
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OneOfHisJewels
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Joined: 8/9/2007
From: California
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As far as the nursing thing, could you get the hysterectomy, and then if necessary take those drugs that help lactation, or would you be on too many other meds?
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RE: Hysterectomy at 28 - 6/25/2008 1:14:56 PM
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PrincessDonna
Posts: 10218
Joined: 4/11/2005
From: Cow country, Upstate NY
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OH! Some that totally need to be on there...
-Will the baby be allowed to be with me post-op in the hospital the entire time, if someone is there to care for the baby?
-I expect to breastfeed my baby, just a c-section mom would be able to, without having to pump and dump. Will you make sure any meds I am given are safe for the baby?
_____________________________
He fulfills the desires of those who fear Him;
He hears their cry and saves them.
The Lord watches over all who love him,
but all the wicked He will destroy.
~Psalm 145:19-20~
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RE: Hysterectomy at 28 - 6/25/2008 3:30:48 PM
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FAWIHTT
Posts: 80
Joined: 2/14/2008
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I had a complete hysterectomy over a year ago and the recovery time was long and hard. I would make sure that you are prepared for that. My doctor put me on Premarin for hormones and I needed them at first but I haven't taken them in months now and I don't have any problems not taking them.
_____________________________
God Has Blessed us to make us a blessing. Genesis 12:2
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RE: Hysterectomy at 28 - 6/26/2008 7:43:24 AM
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FAWIHTT
Posts: 80
Joined: 2/14/2008
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no I didn't know I had a cysyt attached to my ovaries. They drained 2 liters of fluid out of it. It was huge and I am bad about taking meds I stopped taking due to forgetting to take it and then I realized I was fine without it. i know another lady the same thing. No i didn't know about the horse pee ty for the info.
_____________________________
God Has Blessed us to make us a blessing. Genesis 12:2
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RE: Hysterectomy at 28 - 6/26/2008 11:57:33 AM
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PrincessDonna
Posts: 10218
Joined: 4/11/2005
From: Cow country, Upstate NY
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Went through my list with my doctor. I really, really love him. He is just great...a great listener, a great explainer, a great doctor.
-When is the best time to do to the surgery after baby? He now says he wants to do it 2 months after the baby is born, to make sure we get everything before it has any chance to start spreading more. So instead of January, we're looking at early November.
-Will you need to open up my previous scar (belly button to pubic bone) or is it possible to do this (and do it WELL) with a combo vaginal and laproscopic surgery? He thinks he can do it laproscopically, especially if we do it at 2 months postpartum.
-Is there any chance of leaving the remaining ovary, if the endometriosis is completely cleaned out? If we leave the ovary, chances are, it will grow more "mess" and I'll need another surgery later to remove that too. He strongly recommends taking the whole thing out in my case.
-What kind of things can I expect to deal with after the surgery? (ha...that's a nice open-ended question ) Depends on whether it is able to be done laproscopically or open.
-Is it necessary to start HRT right away or would it make sense to see how my body reacts first? He recommends starting the lowest dose estrogen right away, but will leave it up to me.
-What effect will HRT have on breastfeeding (I would like to nurse my baby for at least a year)? On the lowest dose that takes care of any symptoms, it should not effect bfing because that estrogen won't be any more than my body would already produce on its own.
-If HRT will affect breastfeeding, is it possible and safe to not take any hormones until I am done nursing? Up to me, but again...since I would naturally have hormones anyway, a low dose will not affect baby.
-Do you prescribe synthetic or bioidentical hormones? (Bio-identical are newer and seem to be the preferred method.) Bioidentical.
-Do you recommend any "natural" supplements to help with symptoms? No, but he is willing to work with me if I want to try them.
-From my research, if I do need HRT, I should only need estrogen, not progesterone. Is this true? And the lowest dose that takes care of my symptoms is all I need? Yes and yes.
-What effect can I expect on my sex life? What are the common solutions for usual problems? He expects that with my history of pain from the endometriosis, we should see a great improvement in our sex life. Lubrication may be an issue, but that is easily dealt with.
-Will I go crazy? This may sound silly, but I am very worried about this. He doesn't think so, but they will watch me carefully because of being postpartum AND having a hysterectomy so close together.
-Will the baby be allowed to be with me post-op in the hospital the entire time, if someone is there to care for the baby? Yes, absolutely. If laproscopic, the longest I should have to be there is overnight anyway.
-I expect to breastfeed my baby, just a c-section mom would be able to, without having to pump and dump. Will you make sure any meds I am given are safe for the baby? Not a problem.
- will your doctor write you a prescription for heavy dosages of chocolate? Yes.
_____________________________
He fulfills the desires of those who fear Him;
He hears their cry and saves them.
The Lord watches over all who love him,
but all the wicked He will destroy.
~Psalm 145:19-20~
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RE: Hysterectomy at 28 - 6/26/2008 12:01:07 PM
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Jenny-Fair
Posts: 5783
Joined: 4/11/2005
From: WA
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Donna, that sounds wonderful! What a blessing.
_____________________________
Tony: Ziva, did you kill Houdini?
Ziva: It is possible. I do not remember all their names.
My Blog
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) and they didn't know that was what she had until after her hysterectomy was done. After asking me a few questions, she absolutely agreed that if we are done having babies, this is the best option for us. It was very encouraging for me to talk with her, and confirmation that we are not jumping the gun. Not once did she make me feel we should just pray harder or have more faith.
The bioidentical ones are plant-based and have been found to be closer to the hormones our bodies produce naturally...just in case anyone else needed to know that factoid some day...